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Post by steve201 (deceased) on Aug 5, 2012 8:25:58 GMT 9
Sorry guys I haven't been on lately....had a really bad throat infection where they raced me down to CT for a scan and found I had some sort of 2mm deal that was causing me quite a bit of pain...at first they thought they were going to operate and decided against it....so..now I'm on antibiotics and pain killers....hasn't been fun...thanks for all the prayers.....
Steve
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Post by steve201 (deceased) on Aug 1, 2012 12:57:33 GMT 9
Postal Ron yep it's great to know everyone is praying for me....I do sincerely appreciate it and for all you ole guys....thanks so much for the mass mailing to god...your definitly are not wasting your time..even if I'm drugged into stoopidity....I do appreciate it all... as for taste buds..all I can say is OMG...food tastes like crap...I didn't think I could eat such garbage ...this is the stuff that I swore that I'd never feed my dogs..turns out my taste buds got some sort of short in it....I had marsha bring me in a breakfast jack.....tasted worse than the food they bring me here..... I tried to get the sponge bath but by the time I got all the drugs in me and all....the cute ones were gone and the homely ones showed up...dang......just my luck... anyway....thanks again everyone for the prayers...concerns..comments and cards....they are truly greatly appreciated... Steve It's great to know that you have megadoses of prayers coming at you every weekend. Don't forget that some of us loners are sending you smaller batches every day. best thing is that you're getting all of them, so you better be sucking them in and soaking them up. We dont figure to be wasting our time. Keep smiling, think good thoughts, laugh at least a couple times a day, and listen to your nurses. oh, and by the way, daily sponge baths is good, just dont let the wife find out,   |
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Post by steve201 (deceased) on Aug 1, 2012 11:59:07 GMT 9
PP I'm hoping the second rnd will do the trick.... listen...the weekend I was pretty drugged up cuz they gave me benedrill via IV as they injected platelettes into my iv....but I do appreciate the prayers and thoughts from everyone..... I do believe god has more for me to do...but right now I have something to get thru for some reason.....I can only pray that the second rnd works and within a yr..I'll be better... thanks again for everything guys....I do appreciate everything from you guys....and other I know... I'm trying to be strong but when the doc told me that the first one didn't work I broke down...I maybe determined but it broke my heart to see my wife come apart.....now I have to keep her focused and hopefully get her back to work next week.... so thanks for all the prayers and cards...they are greatly appreciated..... it keeps me going and reminds me of all the cyber friends I've made..... god bless each of you and may you never suffer as I am... Steve Sounds like one dose of chemo almost got the job done so maybe the second will turn the corner for you. 65 of us early rising older folks at the 8:15 service lifted you up in prayer last Sunday. Got to tell everyone how my friend Steve up in Washington needed a "push" from Texas. Hope you felt it from there. How does the chemo affect you with side effects? Mine was OK the day going in but left me weak and nauseous the next day but recovering by day 3. One of my buds was getting the same dose but had no problems at all. I lost 85 pounds over six months of one dose a week but after it ended I began to feel better fast. Can you get any exercise like walking? Does food taste any different with chemo. My taste buds reversed during chemo. Things I liked tasted badly and things I never liked tasted great. After chemo was over things got back to normal.... and the pounds started coming back. How's the gut doing? That was terrible to have that along with leukemia. Man, I'm thinking about you every day. That picture of you in April at the birthday celebration shows you had the strength to make it through the difficult times ahead and the smile in the hospital said the spirit is still there. Hang tough buddy. We old farts will send more prayers your way on Sunday. Pat P.  |
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Post by steve201 (deceased) on Jul 31, 2012 3:06:26 GMT 9
well...the oncologist just stopped by with the results of the bone marrow biopsy from last week.....the news isn't good.....the first round looked promising and they thought it was going to be a good treatment but there showed some return of the leukemia on the 2nd biopsy they took last week.....
so...I have to do another round of chemo starting today....needless to say this was disheartening and a bit of a set back...if this 2nd rnd doesn't work...then I'm left with clinical trails or hospice.....
keep those prayers comin...
Steve
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Post by steve201 (deceased) on Jul 27, 2012 13:47:49 GMT 9
welp..finally got the chance to upload the photo that can be used to disciplin your kids and dogs....  Steve |
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Post by steve201 (deceased) on Jul 27, 2012 13:11:13 GMT 9
well...today started out ok....got up..had a rough nite sleeping due to pain...after things settled down and I got up at about 8am....the oncologist came in and said nothing else to report out ..the blood work is right where it's supposed to be and the next bone marrow biopsy was scheduled for monday.....he left and as I had gotten out of the shower, get a call from the same doc and the latest labs from 5am showed the white cells were increasing in numbers....for the past few days it was at zero....well....got the biopsy today at 2pm and we'll probably know something around tues...but the reason for the move up a couple of days is that the white cell count started increasing....albiet rather small numbers but it wasn't expected and this should indicate that the leukemia is gone...and if that's the case...it would mean that the stem cells could be introduced earlier.....I sure pray that is the case...
Steve
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Post by steve201 (deceased) on Jul 27, 2012 9:24:47 GMT 9
a few of us were wondering how to get tested?  contact your local cancer care aliance group or cancer care center and tell them you want to donate to the data base as a donor...they will send you a package to fill out...and then make an appt to come in and donate stem cells...they test your blood sample and determine where in the data base you fit.....for you ...all it is is a blood draw to test the type and match for stem cells... Steve |
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Post by steve201 (deceased) on Jul 27, 2012 3:51:35 GMT 9
pat...thanks for the prayers from your group....
the intestinal problem is resolved as far as it can right now with the chemo drugs still in my system....once that gets done and the chemo starts to leave....then I should have full mobility of my stomach.....last nite was rough cuz I was in so much pain in the gut...they had to give me more than usual to get me to settle down...
when I say stem cells....what happens is the match donor will get plugged into a machine where they take blood from the donor and remove the stem cells from the blood....it separates the stem cells somehow and returns the blood back to the donor and the stem cells get removed for transplant......
the bone marrow is to see if there is leukemia....that is the only way to tell if one has it other than certain other indicators...but bone marrow tells it definitively...
POSTALRON!!!...got the new orange cap today.....my doc's all thought it was hilarious....I'll get it posted somehow and post it here.....
Steve
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Post by steve201 (deceased) on Jul 26, 2012 4:05:54 GMT 9
too funny!!!!..
Steve
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Post by steve201 (deceased) on Jul 26, 2012 1:05:36 GMT 9
hahahahahahaaa......what a classy looking potus....NOT!!!!
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Post by steve201 (deceased) on Jul 25, 2012 22:26:17 GMT 9
it started...my hair is starting to fall out....scratched my head some this morning and had a fist full of hair.......guess I'll be a "Q" ball for awhile....we were told to expect it...be nice if I were the exception.....
thank god gene got me a hat!!...
Steve
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Post by steve201 (deceased) on Jul 25, 2012 8:49:58 GMT 9
well..I gotta tell you ...I had the surprise of my life today since I've been here at the local laughing acadamy.....
Gene50 was out shopping for extra ammo or more weapons I guess and picked up a hat from the famed Bull's eye indoor range down in tacoma...I guess he knows I'm a shooter and prevailer of lead but for whatever reason...he sent me a hat with a musical card ......Gene...we've never met and for you to take the time to effort to think of me when the feds are trying to lock up all ammo was just super......I am so humbled for the caring and out pouring of blessings and encouragement is just to awesome.....
thanks Gene....
Steve
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Post by steve201 (deceased) on Jul 25, 2012 4:21:46 GMT 9
tough nite last nite...let me tell you...didn't get alot of sleep due to being bugged every hr on the hr it seemed .....plus having to pee like a race horse all the time.....didn't know my bladder held that much....
got a mess of emails...cards.....hospital cards and a few e-cards from you fine folks here and I can't tell you how much I appreciate them all....
not much to report out...the white cells are down to zero...I have a few weeks before I can try the stem cell...keep praying that my sister is a match...
thanks again for all the cards and stuff.....
Steve
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Post by steve201 (deceased) on Jul 21, 2012 16:33:42 GMT 9
ok...today was sorta funny.....at least I thought so....I have this team ..which I call the 3 amigos ...doc's Holister parker and poole..which also sounds like cheesie lawyers from the 3 stooges......holister, a nice young man is obviously limp wrtisted.....but seems to know his medicine........poole, a very serious young lady but a bit masculine in the way she stands .....well...they come in and see how I'm doing every day...then talk for a bit reviewing meds, blood count ...etc....all that doctor stuff.......then
without missing a beat...all 3 pull out there stethescopes and start poking and prodding and listening.......
well...after I started feeling a bit better...I had one of the nurse techs get me a spare stethescopes for a gag.....hid it under my blanket ...and yep...here comes holister and poole...parker was on another case so it was just the 2 amigos....well...the usual hits and they ask thier questions.....poke ...prod.....review meds/labs etc....then they each reach for thier stethescopes......just like me...I grab mine under the sheets....and then start listening around my chest...the move onto holisters back....pooles shoulder all the while they are trying to be serious.....well....poole started cracking up and then holister.....my sister and wife were just giggling cuz I had those things in my ears going "mmm hmmm"....."hmmmmm"...and where were you listening over here???....just making a pain out of myself.....well...it was too funny and the serious dr. poole couldn't contain it....she walked out laughing down the hall....
thought I'd share some fun since sometimes it gets really boring here.....
Steve
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Post by steve201 (deceased) on Jul 21, 2012 12:26:10 GMT 9
the nut job has been on every tv show on every channel it seems.....not counting the 6k rnds of ammo(which will get banned)...and then there is the fact that he rigged his apt to explode.......geez.....he's got every rule in the world against him and now all they gotta do is enforce the laws!!!!
I'll take the nurses....George's butt is too cold and boney..
Steve
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Post by steve201 (deceased) on Jul 21, 2012 9:12:30 GMT 9
today was the last chemo drug treatment I had to take..hopefully they will slow the amount of iv's so I can get some sleep.....
gene....I owe ya one!!!
Steve
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Post by steve201 (deceased) on Jul 20, 2012 15:43:57 GMT 9
I have to make light of it...who's gonna take a guy serious dressed in yellow anti slip socks...green out fit...pushing a pole with a bunch of bags down the hall that is named George...( the tree)......all I do is say..come on George...time to go pee again.....
Steve
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Post by steve201 (deceased) on Jul 20, 2012 11:24:27 GMT 9
thanks for all the well wishes....today was a bit easier but tough just the same.....got to take my first shower standing up in I don't know how long...then the PT came in and along with 2 of her henchemen....walked me down the hall and back.....
my white blood cells are just about all gone....so..I'll be on my last treatment for this part.....then....my hair will fall out....gotta get the barber up here so they can just cut it off....wife is gonna bring me a baseball cap ...hopefully I won't look like an ugly "Q" ball..........
then they had to move one of my IV's to a new location.....I hate it when they do that.....of course I've been stuck so many times that I feel like a pin cushion would be an improvement...
Steve
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Post by steve201 (deceased) on Jul 19, 2012 12:53:38 GMT 9
got another stack of cards from you guys.....thanks so much for all the kind thoughts and prayers........
today was rough day....day 5 of chemo and the up every hr of the nite to go pee.....after awhile just as you get to sleep ...you end up having to go pee again......man..don't know if I got another 3 weeks of this ...
hope everyone is doing well...thanks again for all the cards guys.....they really do mean alot and I have no way of expressing my appreciation to you for taking the time and effort to send them...
Steve
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Post by steve201 (deceased) on Jul 18, 2012 9:43:50 GMT 9
wow guys !!!....I got a mess of cards from several sites today....friggin stack of em.....I can't thank you enough for the support and blessings from everyone here....they really do mean alot....
I am now at the bottom of the barrel as far as white cells go...they have officially killed them off and then I have to go thru some other item to happen...I'm on day 5 of chemo drugs and I'll be here about a month.....then it will be a wait and see if stem cells will take once I have a donor......my sister is here from dallas and they are trying to determine if she's a match...
thanks again for all the cards this morning......all I can say is the support and prayers from you all are tremendous......
Steve
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